When Melody turned five, some relatives gave her money for a pink Porsche.
It was definitely a nice addition to her 250-person birthday bash.😊
A couple of years later we took an outstanding Doman training to learn how to help her with her development. We were trying to figure out ways to motivate her to crawl more, which is extraordinary for her brain. We told her ONE time that if she crawls to her car, she gets a ride through the house. She has crawled countless yards for that car since then. It is just one example of how much she understands!
Melody has been healthy for two and a half years now, but at the end of May, she got extremely sick. She was lethargic and had high fevers.
In the midst of it, we had times of worshipping the Lord in song as we gathered around her lifeless little body, putting our eyes on Him and not our circumstances. This helped me to gain a heart of surrender.
We were steadfast in our efforts to keep her hydrated, syringing liquid into her for hours on end. That worked for four days.
She could not keep anything down on day five, and we had to take her for an overnight stay in the hospital to receive hydration. We are thankful that she has not been to a hospital for sickness since 2016.
In the midst of that she got a UTI that persisted for a long time. We normally keep those at bay with D-Mannose, the potent component of cranberry, mixed in her food. Since she was not eating during her sickness, we did not think about the D-Mannose. It was a tough few weeks and utterly heartbreaking to see her so weak and vulnerable.
We had put her car out in the garage for a while after we moved. When Melody started to turn a corner with her sickness, we pulled out her car just to see if that would spark a little life in her. Sure enough, she took one look at it and crawled off with great delight. Her brother gave her a ride for quite a distance. When he tried to take her out of the car, she gripped the steering wheel with all her little might. Apparently, she had missed her car.😊 When Melody wants something, she never expresses anger or frustration. She just has a quiet, endearing determination.
Thankfully, with the help of a naturopathic doctor, she has not only fully recovered from her sickness, but her health is better than ever. We are so thankful for God’s wisdom and direction on this. She is making some incredible progress with her tummy, her brain, and several other things. She really is doing amazingly well!
On a sad note, we have had to put her Porsche to rest.😢 I know you Porsche fans might be a little downhearted about this. It was having some mechanical problems. Her brother made a valiant effort to fix it, but there were too many challenges. In addition to that, Melody has gotten too tall for it.
The good news is that her grandparents gave her money for a new Mercedes. (See the cute video at the end of this post.) Needless to say, she loves it! The day it arrived, we let her take a nice long drive outside. When her sister tried to pull her out of the car after the walk, she held on tight to the steering wheel. Do you blame her?😉 Who wouldn’t want to drive around in a fancy new car?
I think we can all agree that Melody is perfectly human.🥰 She certainly has challenges most others do not have, but they make her no less human. Tragically, babies with Trisomy 18 are labeled “incompatible with life,” a horribly dehumanizing term, which often leads to lethal consequences for these little ones.
The only difference between Melody and her little Trisomy friends in the womb is time and nutrition. It is a common practice to take the life of these little ones by cruel means. The alternative is to let them live out the natural course of their lives. Although they might only be here for a brief time, we can choose to honor them with unconditional love, acceptance, and compassion regardless of their vulnerabilities. We can have the opportunity to hold them, cuddle them, and kiss them while they are here, just like we would any other baby.
If you know anyone who receives a positive screening test for Trisomy 18, please share this tab on Melody’s website with them. With a positive screening test comes anything but hope, encouragement, or words of life. This link is a practical way to help heart-broken parents navigate through the news that their baby might have Trisomy 18.
James 1:16-17 Do not be deceived, my beloved brethren. Every good gift and every perfect gift is from above, and comes down from the Father of lights, with whom there is no variation or shadow of turning.